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Prisbevakning
Få notis vid prissänkningAv: Maria J. Kefalas
Lägsta pris
BookHero
242 kr
Vi har hittat boken hos 2 butiker med verifierade priser — alla är partnerbutiker som vi får provision från när du klickar på ”Visa hos butik”. Vissa butiker visas som extern länk utan pris — priset ser du först hos butiken. Priset för dig är detsamma. Frakt kan tillkomma och varierar mellan butiker och leveranssätt — kontrollera alltid aktuellt pris och leveransvillkor hos butiken innan du slutför köpet.
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Butiken med lägst pris i prislistan på boksidan just nu.
The inspiring story of a mother who took unimaginable tragedy and used her grief as a force to do good by transforming the lives of others. When Maria Kefalas’s daughter Calliope was diagnosed with a degenerative, uncurable genetic disease, the last thing Maria expected to discover in herself was a superpowerShe and her husband, Pat, were head over heels in love with their youngest daughter, whose spirit, dancing eyes, and appetite for life captured the best of each of them. When they learned that Cal had MLD (metachromatic leukodystrophy), their world was shattered. But as she spent time listening to and learning from Cal, Maria developed the superpower of griefIt made her a fearless warrior for her daughter. And it gave her voice a bell-like clarity—poignant and funny all at once. This superpower of grief also revealed a miracle—not the conventional sort that fuels the prayers of friends and strangers but a realization that, in order to save themselves, Maria and Pat would need to find a way to save othersAnd so, with their two older children, they set out to raise money so that they, in their son PJ’s words, could “find a cure for Cal’s disease.” They had no way of knowing that a research team in Italy was closing in on an effective gene therapy for MLDThough the therapy came too late to help Cal, this news would be the start of an unexpected journey that would introduce Maria and her family to world-famous scientists, brilliant doctors, biotech CEOs, a Hall of Fame NFL quarterback, and a wise nun, and it would also involve selling 50 thousand cupcakes. They would travel to the FDA, the NIH, and the halls of Congress in search of a cure that would never save their child. And their lives would become inextricably intertwined with the families of 13 children whose lives would be transformed by the biggest medical breakthrough in a generation. A memoir about heartbreak that is also about joy, Harnessing Grief is both unsparing and generousSteeped in love, it is a story about possibility. Format Häftad Omfång 200 sidor Språk Engelska Förlag Beacon Press Utgivningsdatum 2022-01-18 ISBN 9780807055472
Avvakta – priset är högt
2 kr dyrare
Rör sig ofta
Författare
Maria J. Kefalas
Förlag
Beacon Press
Utgivningsår
2022
Format
Häftad
Sidantal
200
Språk
Engelska
ISBN
9780807055472
BookHero
242 kr
Vi har hittat boken hos 2 butiker med verifierade priser — alla är partnerbutiker som vi får provision från när du klickar på ”Visa hos butik”. Vissa butiker visas som extern länk utan pris — priset ser du först hos butiken. Priset för dig är detsamma. Frakt kan tillkomma och varierar mellan butiker och leveranssätt — kontrollera alltid aktuellt pris och leveransvillkor hos butiken innan du slutför köpet.
Skriver du om boken på en blogg eller sajt? .
Priset har nyligen gått ner jämfört med butikens eget tidigare pris.
Det lägsta priset vi sett för boken sedan Booki började mäta.
Billigaste butiken ligger under de övriga butikernas medianpris just nu — en jämförelse mellan butiker, inte ett prisfall över tid.
Butiken med lägst pris i prislistan på boksidan just nu.
The inspiring story of a mother who took unimaginable tragedy and used her grief as a force to do good by transforming the lives of others. When Maria Kefalas’s daughter Calliope was diagnosed with a degenerative, uncurable genetic disease, the last thing Maria expected to discover in herself was a superpowerShe and her husband, Pat, were head over heels in love with their youngest daughter, whose spirit, dancing eyes, and appetite for life captured the best of each of them. When they learned that Cal had MLD (metachromatic leukodystrophy), their world was shattered. But as she spent time listening to and learning from Cal, Maria developed the superpower of griefIt made her a fearless warrior for her daughter. And it gave her voice a bell-like clarity—poignant and funny all at once. This superpower of grief also revealed a miracle—not the conventional sort that fuels the prayers of friends and strangers but a realization that, in order to save themselves, Maria and Pat would need to find a way to save othersAnd so, with their two older children, they set out to raise money so that they, in their son PJ’s words, could “find a cure for Cal’s disease.” They had no way of knowing that a research team in Italy was closing in on an effective gene therapy for MLDThough the therapy came too late to help Cal, this news would be the start of an unexpected journey that would introduce Maria and her family to world-famous scientists, brilliant doctors, biotech CEOs, a Hall of Fame NFL quarterback, and a wise nun, and it would also involve selling 50 thousand cupcakes. They would travel to the FDA, the NIH, and the halls of Congress in search of a cure that would never save their child. And their lives would become inextricably intertwined with the families of 13 children whose lives would be transformed by the biggest medical breakthrough in a generation. A memoir about heartbreak that is also about joy, Harnessing Grief is both unsparing and generousSteeped in love, it is a story about possibility. Format Häftad Omfång 200 sidor Språk Engelska Förlag Beacon Press Utgivningsdatum 2022-01-18 ISBN 9780807055472
Avvakta – priset är högt
2 kr dyrare
Rör sig ofta
Författare
Maria J. Kefalas
Förlag
Beacon Press
Utgivningsår
2022
Format
Häftad
Sidantal
200
Språk
Engelska
ISBN
9780807055472
”21% billigare” visar hur mycket lägre det billigaste priset är än medianpriset hos de övriga butikerna just nu — inte ett tidsbegränsat prisfall.
ISBN 9780807055472 jämförs hos alla butiker
The inspiring story of a mother who took unimaginable tragedy and used her grief as a force to do good by transforming the lives of others. When Maria Kefalas’s daughter Calliope was diagnosed with a degenerative, uncurable genetic disease, the last thing Maria expected to discover in herself was a superpowerShe and her husband, Pat, were head over heels in love with their youngest daughter, whose spirit, dancing eyes, and appetite for life captured the best of each of them. When they learned that Cal had MLD (metachromatic leukodystrophy), their world was shattered. But as she spent time listening to and learning from Cal, Maria developed the superpower of griefIt made her a fearless warrior for her daughter. And it gave her voice a bell-like clarity—poignant and funny all at once. This superpower of grief also revealed a miracle—not the conventional sort that fuels the prayers of friends and strangers but a realization that, in order to save themselves, Maria and Pat would need to find a way to save othersAnd so, with their two older children, they set out to raise money so that they, in their son PJ’s words, could “find a cure for Cal’s disease.” They had no way of knowing that a research team in Italy was closing in on an effective gene therapy for MLDThough the therapy came too late to help Cal, this news would be the start of an unexpected journey that would introduce Maria and her family to world-famous scientists, brilliant doctors, biotech CEOs, a Hall of Fame NFL quarterback, and a wise nun, and it would also involve selling 50 thousand cupcakes. They would travel to the FDA, the NIH, and the halls of Congress in search of a cure that would never save their child. And their lives would become inextricably intertwined with the families of 13 children whose lives would be transformed by the biggest medical breakthrough in a generation. A memoir about heartbreak that is also about joy, Harnessing Grief is both unsparing and generousSteeped in love, it is a story about possibility. Format Häftad Omfång 200 sidor Språk Engelska Förlag Beacon Press Utgivningsdatum 2022-01-18 ISBN 9780807055472
Avvakta – priset är högt
2 kr dyrare
Rör sig ofta
Författare
Maria J. Kefalas
Förlag
Beacon Press
Format
Häftad
Sidantal
200
Språk
Engelska
ISBN
9780807055472
Det lägsta priset just nu är 192 kr hos Bookoutlet, av 2 butiker vi jämför. Priser ändras löpande – kontrollera alltid slutpris och frakt hos butiken innan köp.
Priserna uppdateras automatiskt, vanligtvis minst en gång per dygn. Senaste registrerade uppdatering: 8 september 2026.
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